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Vital Info


Formosa (formosa1984)


February 23, 2012


Taipei, Taiwan


Loved One is a Cancer Survivor

Cancer Info


Alison


mother


May 16, 2006


Stage 3


Yes


Seeing your loved one suffer, and being helpless to do anything about it...


To treasure life, to love life and live like there is no tomorrow


Stay positive, and spread love, hope and happiness to all around you...


retroperitoneal lymph node, spine C7


Taipei Veterans General Hospital / Wanfang Hospital


Oral hygiene is very important to ensure mouth / throat sores do not get worse. Get plenty of rest in the days following treatment. Get a glutamine supplement, which will boost your energy levels and reduce the effects (sores, fatigue) of chemo-/ radio-therapy. Even if you do not have the appetite, you must eat. Think of what you like to eat, and eat that! Spread out meals over the day, eat when you can and when you feel like it. Eat in small quantities. If you have difficulty swallowing, drink cold liquids, blended juices and soups. Ice cream is a wonderful treat, and can be blended with fresh fruits!


Try to give the patient love and encouragement and physical contact (hugs, strokes, pats...). Meditation can help calm the mind. Go outdoors, get in touch with nature. Think positive, and do not always think you are a "patient" or that you are different from others. If you cannot beat it, coexist with it...


Colon cancer: bowel discomfort and bloatedness for some weeks, sudden sharp pain at one point. Smaller/thinner stool, darker in colour. Spinal cancer: compression of the tumour on the nerve causing great soreness and pain on arms and hand. Section C7 reflects the left hand, while section T2 reflects more or less the right hand. The soreness and pains can get so bad that you cannot move your arms. Prolonged compression on the nerves can damage the nerve permanently, and if the tumour eats away the bone, the spine may collapse and result in complete paralysis...


Feb 2012, at Wangfang Hospital, Taipei. First place section L5, in the lower back (one hour), then section T2, in the mid-back region, three hours (spread over three days). Side-effects include sore throat and lost voice (only one week), lethargy and fatigue, and sores around the treatment areas. Steroids taken to protect nerves and surrounding tissues caused severe vomiting. Effectiveness yet to be assessed.

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Bath time

Mum looks forward to bath time like an excited girl. Almost every day she asks if there is a time slot open for her. There is only one special bathroom which caters to patients who are unable to bathe themselves at the hospice. To take a bath, you need the assistance of at least a nurse and two volunteers, so it’s a big effort and the availability is limited, and therefore mum can only get to use it one every two, three days or so.

The nurse came in in the morning and told her that she is third in line. “Do I have to wait long? Last time I waited till the afternoon…” mum said. Moments later, the nurse came back and said she did some rearranging, and mum could go first. A smile lit up on mum’s face immediately.

A volunteer auntie came in and approached me. “You should go inside and bathe your mum! Go, don’t be shy! Just remember your mum used to bathe you when you were little, and now you can help her bathe. It is a very special experience, something to remember.”

Personally, I actually am not shy about it. But I am afraid mum would be. Last time (I wasn’t at the hospital at that particular moment…) when mum bathed, brother was told to go outside and wait. I went to help get fresh linen to change the bed while mum is in the bath, and when I came back into her room, the same auntie came up to me excitedly: “You have been chosen! Your mum wants you to go in with her!” I looked at mum, and though she said nothing, there was a look of agreement on her face. Brother was in the room too, together with his wife and baby. “You should come too,” I urged him, and in the end, our whole family went into the bathroom together.

The tub was already filled with warm water, and at mum’s request it was “especially warm”. “I want to enjoy it more,” she told the nurse before she was wheeled into the bathroom. The nurse, carer and volunteer auntie covered mum’s ‘parts’ up with cloth, and slowly lowered her down into the tub. “Don’t worry, the special bits will all be covered up by the bubbles!” the nurse joked.

Mum seemed to sigh. The expression on her face was one of bliss and enjoyment. She told me before that when she is bathing, even if it lasts only fifteen minutes or so, she feels like she is drifting. Drifting and feeling very light. It is a wonderful feeling, she said. And for those few moments when she is drifting in the water, the sores, the pains, the physical discomforts seem to melt away into the warmth of the tub. Tub with massaging jets and temperature control!

My brother and sister-in-law and I stood by the side and watched, a little unsure what we could do to help. “Come! Come help wash her hair!” the volunteer auntie beckoned. I was excited, but mum looked a bit unsure. She has before complained that I cannot wash my own hair properly, so she must be thinking how I would manage to wash her hair. “Don’t worry, your son can do it. He can give your scalp a nice massage!”

Squeezing some shampoo onto the palm of my hand, I began to moisten mum’s hair. Slowly at first, as I was unsure whether mum would feel any pain, I massaged her scalp. First it was with one hand, then it was with two. I jokingly imitated what they ask at the hairdressers when they wash your hair: “Is there anywhere you need extra attention with?” At that moment, mum had her eyes closed, I later learned from a picture that was taken of me washing her hair. At that moment, with her eyes closed, mum looked like she was lost in a blissful, blissful dream…

I massaged her head for a short while, and turned to my brother: “You go!” I urged him, tried to persuade him with gestures of my foamy hands and smile. He smiled nervously, and looked very awkward. I rinsed my hands clean, and walked up closer to him. “Go on, it’s a very special experience…” Deep down, I was thinking to myself “What are you afraid of? She is our mother. This might be the first and only time you will get to do this for her…” He still looked very embarrassed, but in the end he went to stand behind mum and did what I just did. I stood by the side and smiled. Inside I was tearing, as I am tearing now. Tearing because it was so beautiful. So very beautiful…

While brother massaged mum’s head, I reached into the tub and helped scrub mum’s body. My fingers felt every bone of her ribs, felt the contours of her spine through the thin layer of aged skin on mum’s back. Mum’s legs have become so thin she can no longer stand and carry her own weight. Her hips protrude sharply and her thin arms lay by her side. Mum looked so helpless, so much like a small child who needed the constant protection and care of others. Cancer did this to her, cancer made her so frail, so ill, so thin… Cancer is weakening her body bit by bit, bit by bit…

But I smiled at mum, smiled at the experience of being able to help bathe her, clean her and make her feel comfortable and loved. Cancer can ravage her body, cancer will take her away from me soon, but it cannot ravage or take away this beautiful moment and memory created with mum and my entire family, a moment when we bonded at a whole new different level…

Back in her bed, mum smelled good, and her skin felt smooth and clean to the touch. I leaned in close and grabbed one of her arms and placed it on my cheek. Her body felt warm. “You comfortable and clean now?” Mum nodded slightly, and on her face was still the smile that could hardly contain the sensation of bliss, contentment and being at ease…

“Rest well, mum,” I said softly as I rubbed her arm against my face and kissed her hand gently, “Rest well…” Mum closed her eyes, and on her face was that smile still.

the_spa_at_the_hospice
ladyofthelarynx sent you a hug.

This brought tears to my eyes; to see that something as simple as taking a bath can be such a special moment. I am glad you got to experience that. And, to have pictures showing the joy you were able to hive her at that moment is priceless. I have read all your posts tonight and can feel the love you have for each other. I know this is a hard journey for all of you, but I know your mother is so proud of you, and you can be proud of yourself. You are a special son, and we can all only hope to have someone as caring and loving as you when we are sick. You have such a way with words, too. I could see you being a real inspriation to caregivers everywhere. Maybe one day you will put your posts together and write a book for those of us with loved ones affecting by cancer. I, too, found this page, not as a cancer survivor, but as a caregiver. There is so much support on here. These wonderful people have gotten me through some tough times. First with my mother-in-law, who came to live with us with hospice care. And now, my sister has been diagnosed with colon cancer. In the beginning I wasn’t sure if I belonged on BFAC. But it didn’t take me long to realize that everyone can benefit from the advice, love, and support that are offered here. I wish I was able to give you a hug, but since I can’t, please know that I am praying that they are able to control your mom’s pain and keep her comfortable. Thank you for sharing your story and helping so many others, while hopefully, therapeutically, helping yourself.